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1. Change the purpose to: Improve care and outcomes for those with ependymoma. 2. Edit the page to: Established in 2006, the Collaborative Ependymoma Research Network (CERN) Foundation is a Nonprofit organization committed to improving the care and outcome of people with Ependymoma, a type of primary brain or spinal cord tumor that occurs in both children and adults, and improve the outcomes and care of patients, through community support and research efforts. [1] The organization is headquartered in Dayton, Ohio, USA. The CERN Foundation offers outreach programs and support efforts to the ependymoma community.
Provide educational resources, such as the Ependymoma Guide, and referral support to the patient and caregiver community.
Bridge the gap between the professional, patient and caregiver community by partnering with other organizations and neuro-oncologists to find better treatment options and guidance for those with ependymoma.
Engage the ependymoma community through research efforts, clinical studies, and awareness activities. History
For over a decade, the CERN Foundation has been at the forefront of the fight against ependymoma, a rare type of primary brain and spinal cord tumor. Taking a broad investigative approach involving scientists from some of the world’s most respected cancer centers, the work of the CERN Foundation has contributed to a vastly improved understanding of the genetic make-up and biology of ependymoma. Today, this knowledge is helping scientists around the world develop new therapies and improve the quality of life for those living with the disease. The concept for the CERN Foundation was sparked in 2006, when during the course of treating a patient facing a recurrence of ependymoma, Dr. Mark Gilbert recognized that there was relatively little in the medical literature on this type of tumor. Responding to the need for more information, Dr. Gilbert proposed the creation of an international group of researchers who would for the first time join together to take a collaborative approach to investigating the disease. [2] To help him in this effort, Dr. Gilbert reached out to a core group of colleagues, including Dr. Richard Gilbertson, a renowned expert in the research of childhood brain tumors, Dr. Kenneth Aldape, a leader in the pathology of adult brain tumors,
Dr. Terri Armstrong, an expert in clinical care and patient outcomes, and Dr. Amar Gajjar, one of the United States most respected pediatric
neuro-oncologists. Together, they assembled a team of laboratory-based and clinical researchers known for their collaborative mind set. Cite error: A Research
Published Research
Fundraising
The CERN Foundation is a private foundation. The majority of funding comes from individuals and organizations who are dedicated to the CERN Foundation mission. Events
Ependymoma Awareness Day
The CERN Foundation established the first Ependymoma Awareness Day on April 19, 2012, with a butterfly release. The CERN Foundation supporters purchase butterflies for the release and proceeds help fund the organization. The Foundation hosts annual Ependymoma Awareness Days in the Spring each year in collaboration with other institutions and the National Brain Tumor Society. [3] References
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— Preceding unsigned comment added by Krodom ( talk • contribs) 20:25, 18 September 2019 (UTC)
Regards, Spintendo 05:50, 19 September 2019 (UTC)
Notes
Update side box to: Purpose: Improve care and outcomes for those with ependymoma.
Update page to: Not to be confused with CERN.
Established in 2006, the Collaborative Ependymoma Research Network (CERN) Foundation is a nonprofit organization committed to improving the care and outcome of people with ependymoma, a type of primary brain or spinal cord tumor that occurs in both children and adults, through community support and research efforts. [1] The organization is headquartered in Dayton, Ohio, USA.
The CERN Foundation offers outreach programs and support efforts to the ependymoma community.
Provide educational resources, such as the Ependymoma Guide, and referral support to the patient and caregiver community.
Bridge the gap between the professional, patient and caregiver community by partnering with other organizations and neuro-oncologists to find better treatment options and guidance for those with ependymoma.
Engage the ependymoma community through research efforts, clinical studies, and awareness activities.
In November 2006, the concept of creating an international group to develop new treatments for ependymoma was proposed to Mark Gilbert, M.D., Deputy Chairman of Neuro-Oncology at MD Anderson Cancer Center, during a meeting with an ependymoma survivor. [1]
Shortly thereafter, Dr. Gilbert was joined by Richard Gilbertson, M.D., Ph.D. and Amar Gajjar, M.D. of St. Jude Children’s Research Hospital, and Ken Aldape, M.D. and Terri Armstrong, Ph.D. of the University of Texas MD Anderson Cancer Center. After the organization created its initial vision and established its leadership, additional partners joined the CERN team. For over a decade, the CERN Foundation has been at the forefront of the fight against ependymoma. On April 19, 2012 the CERN Foundation commemorated the first Ependymoma Awareness Day in Houston with a mass butterfly release. [2]
References
Committed to improving the care and outcome of people with ependymoma through community support and research efforts. [1]
References
The CERN Foundation is a private foundation. The majority of funding comes from individuals and organizations who are dedicated to the CERN Foundation mission.
Ependymoma Awareness Day
The CERN Foundation established the first Ependymoma Awareness Day on April 19, 2012, with a butterfly release. The CERN Foundation supporters purchase butterflies for the release and proceeds help fund the organization. The Foundation hosts annual Ependymoma Awareness Days in the Spring each year in collaboration with other institutions and the National Brain Tumor Society. [1]
References
Krodom ( talk) 20:03, 10 October 2019 (UTC) krodom Employer: the CERN Foundation, my role is the Communications Editor for this organization who I receive compensation from. — Preceding unsigned comment added by Krodom ( talk • contribs) 15:07, 14 October 2019 (UTC)
The proposed edit above does so, but the current page does not. Is linking directly to articles like this generally considered bad practice, or has it just not been done here? RedKnight7146 ( talk) 03:10, 24 February 2024 (UTC)